Gabey D. is our wonderful firstborn son. He was diagnosed with A.L.L (Acute Lymphocytic Leukemia) in May 2007, and has been going through a 3 1/2 year chemo treatment. We are trusting God, and believe He will show Himself Mighty.

Saturday, December 22, 2007

Decadron Days

Every month, we have 5 days of steroid.
It makes him not want to sleep, and makes him wet the bed no matter what we do to help.

Last night, Gideon wouldn't sleep, and I had him in the bed with me for a while and we both finally fell asleep. He got restless at 3am, and so i went to get a bottle. Jeff was up still, because he couldn't sleep. We're both dealing with some sinus junk. He helped me get a bottle, and then Gabey woke up, and came out, chipper, WET and wanting to watch Herbie. (I took the sheets off his bed, and just put a bed pad on, so I wouldn't waste more sheets.)
What a night. I got the baby to sleep, and put him in his bed, and since Jeffie was awake already, I let him stay with Gabey. I'm not sure what time he came back into the room, but I think Gabey woke up one more time after that too. This morning, poor Jeff had to get to work by 7:30, and Gideon woke up around that time, and then Gabey followed closely after that. Now, it's 9:30am and Gideon's asleep, and Gabey's awake. Then, later, if Gabey takes a nap, Gideon will be awake, lol.

We had a fantastic appointment. Gabey's counts are in the range they want to keep him at, so they didn't adjust any of his meds. His counts are ANC 1500, and his platelets are great. They're working to keep it between 1000-2000 for the next three years. It's so nice not to have him be neutropenic, and stuck in the house.

It's funny how much I miss seeing my nurse and doctor friends. I got used to seeing them every week, and now it's once a month. It's a fantastic blessing, but also sad not to be able to chat with them. My one friend, Linda, had her baby while we were out, and our other friend, Regan (I always spell that wrong) is having her baby any day now. I got to see my Jen, and my Denise. I adore them both. I couldn't have handpicked anyone better to take care of my Gabey.


1 comment:

Tiffany said...

How wonderful that his counts are good! Praise the Lord! I understand what you mean - sometimes I missed the nurses at the NICU when we came home. It was weird, I was SO glad to be home and yet it was weird not being in the hospital with all those people to talk to and so many things to do. :-)