Gabey D. and His Leukemia

Gabey D. is our wonderful firstborn son. He was diagnosed with A.L.L (Acute Lymphocytic Leukemia) in May 2007, and has been going through a 3 1/2 year chemo treatment. We are trusting God, and believe He will show Himself Mighty.

Friday, March 20, 2009

Decadron Stinks! LOL!

As Gabey gets older, the steroid that he's on every month, has started to affect him more and more. He acts like he has PMS. It's been really hard to stay calm and not get upset with him. His emotions are in high gear. He's been obsessed with a Hot Wheels game we have on the Wii, and he gets so upset while he's playing it, and freaks out when we tell him to stop the game. Everything makes him cry, and he's getting angry more now too.
This month, he has wanted to eat "grass bread" all the time... the garlic texas toast we have. He ate it for every meal one day. His lips are a bit chapped though, so he's not eating the salty stuff like he wants, because it hurts his lips.

His nails have done ok, only 2 of them have actually started to fall off. I've been putting bandages on them, so they won't catch on anything. The one came totally off, and chrissy cut it off the rest of the way.

His counts were high for months and months, and then this month, the high doses of chemo, and getting sick with a bug drove his counts down to 360. They took him off chemo for 2 weeks, and we'll go back in next thursday to check again. He's feeling fine, but we're having to stay away from crowds and stuff, so no church for him, and no mall or anything. We've just been hanging around the house. There were a few nice weather days this week, so we were able to play outside. I was thankful for that.

Friday, November 7, 2008

Bills are a bit overwhelming.

We used so many credit cards, and stuff for last year, being with Gabey in the hospital, and stuff. Those haven't been kind.

Also, the medical bills from Fairview and Cleveland Clinic have just kept building, and a lot of them are in collections now.

I know I haven't asked recently, but if anyone wants to donate to our paypal... at the donation button on the side, we would be so grateful.

God is good, and we will plug away.

Friday, October 10, 2008

Counts Are Where they should be

We've had a few extra appointments the past few months. Gabey's counts were too high, and they had to raise the level of his chemo. For the study, it's important to keep his counts between 1000-1500. Yesterday, his counts were just under that, so we're ok for now. We have another appointment in 2 weeks for his OR appointment.

Giddy had fun walking around the clinic, and Gabey and him had fun with the wagon.

Thursday, September 25, 2008

little tyrant

gabey's having a hard time going back to regular life after Disney and GKTW. he's been just a bear all week, eeek. temper tantrums, and whining, and just being ornery to everyone, even the dog.

Wednesday, September 24, 2008

Make a Wish Trip to Disney World!!

We're back from Disney World! Gabey and we're trying to adjust to normal life again, LOL. I have a million pics, and posted them on my facebook album.
here are a billion links. LOL.
Day One- on the airplane, and evening at Give Kids the World Village

Day Two... Disney Hollywood Studios, and evening at Give Kids the World Village....

Day Three... quest for Herbie at the Resort and Downtown Disney

Day Four... Sea World

Day 5... Animal Kingdom

Day Six- at the Magic Kingdom
I used the public links, so I hope they work for you, email me, or leave a note in the guestbook if they don't work. I'm still uploading pics, so i'll be adding more links for you. It was such a fantastic week. I'm so thankful for Axelrod Pontiac, and Make a Wish, and Give Kids the World Village for making our week the best ever!

Thursday, July 10, 2008

Started a Caring Bridge Site

I should have started a Caring Bridge site last year, but this blog was fine. I'm not sure if you can subscribe to updates on here though, and since I'm updating less often, I thought it would be helpful for you to be able to subscribe to the caring bridge updates. I will still be updating on here, and posting pics, but that will be like the announcement page, lol.

Thursday, May 8, 2008

Make a Wish

We're going to Disney World!!!
I'll write about it more later, I just got done typing that huge update, LOL.