Beautiful Boy

Hair Cut for the Boys

Gabey was happy to have daddy get his hair cut too. He let me buzz his first, and then made sure Daddy got his done right after.

His head is so soft. :)



His counts on Thursday were 3,000! Woohoo! We'll have a good weekend.

It's Been a Gift

Gabey's hair has been a gift through this whole treatment. He kept it the whole time, until now. We're buzzing his hair tonight, because he's shedding it really badly now. The back has bald spots. I'm sad, but I'm also thankful that it held on longer than usual.

His appointment was easy peasy today, just counts. His counts are still good, because of the decadron.

Pray hard for the next 3 weeks. This week will be an easy rest period, and if his counts are still good, he'll be able to go on in his treatment.

Next Thursday will be really rough, with 3 new chemos. The shots at home will have to strart next week. It's been a part that I've dreaded ever since I learned about them. BUT, praise our Lord, we see the end in sight!

God is still taking care of us.

The antibiotic did a great job, and Thursday was his last day. The doctors looked at his toe, and said it looked great. I'm so thankful.

The visit went just wonderfully. We only had to do some blood tests, and get his counts. They also took more blood for the new study we're in.
His ANC count is down again, a little over 600. I'm learning not to be surprised or disappointed at these drops. It's just part of the process. The decadron was the only reason it was up at all last week.

We felt really blessed yesterday. We were talking to Dr. Kate, and she made a comment..."SO, is he ever going to lose his hair?" I took that as a HUGE blessing that he's kept his hair longer than usual. LOL. Even if he does lose it all the way for the delayed intensification, I'll know we had the blessing of his hair for the time we did.

Dr. Kate, and our NP, Denise, were teasing eachother how they both wanted him every visit. Denise said, "NO, we have to share."



I was so impressed by a little boy that came in. I watched while they accessed him. He was Gabey's age, and I was totally amazed! He didn't have the EMLA cream on, and I could tell it hurt when it went in, and he sat there cringing, and made not a PEEP! What a little toughie!! I had to talk to the dad, and compliment the little boy's strength. He said the boy is in his 2nd year now. He had been accessed earlier, but had pulled it out. I'm not sure why he didn't get more EMLA cream, and I'm so surprised by his reaction to the event.

No News Yet

This picture is from Saturday. My sister and we went to Goody's for dinner, and then shopping. Gabey was so funny, and silly.

He's getting back to normal. He's laughing and being silly a lot. Yesterday, by afternoon, I was worn out, lol. I love that he's getting his energy back. Even with the extra weight that he has to carry around, he's trying to run, and he's moving around a lot. I'm glad of that. He still has some weakness in his legs, and needs help with stairs, and can't get up from the floor unless he pulls himself up with something. I'm not sure when that will go away, as it's a side effect of some of the chemo. His hair is also getting very thin from the VCR, and we're seeing shedding on his car seat.

I have been trying to be patient. I haven't heard from the doctors yet. I finally just emailed the one doctor yesterday, asking if they had any info yet. I'm going to call them today.

It's been a great week though, and I'm glad. Gabey only has to take 2 meds now, and one is just a tiny dose once a day. The Bactrim though, is gross, and a whole TSP full. We have to give it MTW 2X a day. It tastes nasty, and we try to sweeten it with powdered sugar, and syrup, and that ends up making even more for him to take. He freaked out with Jeff last night, and just refused to take it. :( It's like a cold med to prevent Pneumocystis pneumonia. I wish I could get in pill form, to crush up, I'm going to ask about that when I get to talk to the Dr. today.

Haircut for Gabey

Gabey's Auntie Shelly came over, and cut Gabey's hair. He's still really afraid of the clippers, so she cut his hair with scissors. She did such a great job! I never would have gotten it that short without clippers, and Gabey was calm as can be. He liked it when she blew the hair off his face. :)

Gabey's Hair

I was very sad last night. I was playing with Gabey's hair, and I could tell it was changing already.

They have these awesome chemos, but they're not advanced enough to pick and choose which cells they kill. They just target all fast dividing cells, and that just happens to include hair cells, and nail cells.

They said in the beginning, it might thin out, and that in the next few months, he will probably start to lose it.
He's starting to get white hairs sprinkled throughout his hair, and I know soon, it will start to thin out. It just is so sad that it has to be that way. I know it's a little thing compared to this huge sickness that the Lord is bringing him through, but still, I'm sorrowful that his sweet little kid hair is going to be lost. We're going to cut it pretty short beforehand, so he doesn't get too upset by seeing his hair fall out.